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医者もお手上げだった「謎の症状」に悩んでいた女性 → 体験談をシェア → ネット民が病名を突き止める!

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医者もお手上げだった「謎の症状」に悩んでいた女性 → 体験談をシェア → ネット民が病名を突き止める!

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18 Years Ago..

(FIRST! This is technically a repost. I posted this a few nights ago, and while it made it to the front page, it got removed for "breaking community rules." I messaged Sarah, and she said its removal "must have been a moderator mistake." Many people messaged me asking where the post went, and so I am reposting it now that it is back. Thank you for everyone who cares <3" When I was little, all I wanted in the world was to be a dancer.


▼しかし長いこと怪我に悩まされることに

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When I was 12 I got into a terrible biking accident, snapping my left arm in half. (You can almost see the break if you look very carefully.) From that day on, being hospitalized became a very common occurrence for me.

▼松葉づえをついた生活

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I spent three years on and off of crutches due to countless broken ankles, toes, dislocated hips and fractured feet.


▼車椅子にも乗っていた

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But, on October 13th 2011, when I was 16 years old, I was officially put into a wheelchair. I was dancing, and all I can remember is feeling like I had been shot in my right hip, my body seizing up in pain, and collapsing. I couldn't walk, I could barely sit, the only thing that would relieve (most) of my pain was lying down, taking any and all pressure off of my hip joints. I tried to stay positive, but being an athlete confided to a wheel chair is a nearly impossible task to handle...

▼入院生活ではツラいことも多かったそう

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I had to sit in this machine for six hours a day for three weeks after each surgery. It is a machine that slowly (god so slowly) moves your leg back and forth so that the muscles have less of a chance to atrophy after the trauma. It was absolutely horrible.


▼ダンスの世界に戻れたものの、謎の不調に悩まされていた



I was in a beautiful duet this past year choreographed by the amazing Macarena Gandarillas that was one of the best experiences I have ever had. I wish I could tell you the story ends here with a happy ending... But, unfortunately... I can't.



Imgur Diagnosed Me!

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THANK YOU <3

A little back story... Five months ago, I posted "The Story Of A Broken Dancer." In this post, I told the story of how all I've ever wanted was to be a professional dancer, but that countless injuries and unexplained medical issues were coming in between me and my dream. Well, after posting this, hundreds of Imgurians commented on the post and messaged me saying I should look at different conditions or diseases they thought I had, but one that I received overwhelmingly was "Ehlers Danlos Syndrome (EDS), Hyper Mobility Type III." I looked into it and decided it was worth a shot to get the testing done, and as of this morning, I have been officially confirmed to have EDS. Don't be fooled by my happy face, this isn't great news, because there isn't a "cure" to this genetic disease. It's something that I'm going to have to live with my entire life, but thanks to you crazy people, I finally have a diagnoses. I have been searching for a "title" to what's wrong with me for years, and if it weren't for you all, I wouldn't have one. So thank you, Imgur, from the bottom of my heart, you have helped me find closure in one part of my life. Thank you <3 TLDR; Imgurians told me to look into a genetic disease that could be causing my problems, and they were right Here's my original post if you want to see it! https://imgur.com/gallery/kre4N SORRY FOR THE SELFIE I KNOW IM BREAKING IMGURIAN LAW  Read More





















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